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For young people
Living with psychosis
If your mum, dad, brother or sister has psychosis, it may sometimes be difficult at home. You may have a lot to do looking after your parent or sibling. Or you may help one parent take care of the other, or help both of them care for your sister or brother.
If you offer a lot of support, you may get behind at school, or feel tired all the time, or not see enough of your friends. You may not have enough time to get on with your own life. You may feel neglected and lonely because your mum or dad, or both of them, are spending all their time concentrating on the needs of the person who is ill, or you may feel angry that your parent, brother or sister acts in a strange way, or resentful because it seems like your sibling is getting away with bad behaviour.
Being related to someone who has psychosis can be confusing and sometimes frightening.
You may feel ashamed and be too embarrassed to ask friends home or talk about your family life. It may feel like you are walking around carrying a huge secret. You may be worried that you too might become ill in future.
It’s important to talk to someone you trust about what is happening at home. This could be another relative, your GP, or a teacher. Or you could talk to one of the mental health professionals who are supporting the family member who is ill.
It can help if you understand why your parent or sibling is behaving the way they do. One way to do that is to find out about the diagnosis they have been given. This website contains a lot of information about psychosis, and you can email a question to the Ask the psychiatrist, Ask the psychologist or Ask the pharmacist page if you want to find out more.
Support for ‘young carers’
The term ‘young carer’ describes someone who is under 18 and helps look after a member of their family who is physically or mentally unwell for a long time.
There are organisations to support young carers, give them practical assistance and help them cope with their own feelings and emotions. Some of those organisations are listed on this page.
It may help you to talk to other young people who have had a similar experience. You can find a group that can offer you support and give you information in your neighbourhood by visiting www.youngcarer.com. This website has been put together by the Children’s Society which runs a project called The National Young Carers Initiative.
The Princess Royal Trust for Carers has set up www.youngcarers.net which is a website for young carers where you can have online discussions and find useful information.
Many young people who help care for someone have to do extra work around the house, or help the person look after themselves. Young carers can have their own needs assessed and this might lead to practical help and support for the family. You have to ask your local social services department to do this, and your GP or teacher, or one of the mental health professionals in touch with your family, can help you organise this. If you’re under 16, you can ask for an assessment of your needs at the same time as the needs of the person who is ill are being assessed. If you’re over 16, you can ask for an assessment at any time.
This page was put on the site on 8/2/10
Next page update due: February 2011
Links last updated: 10/5/10
Next links update due: August 2010
Research
- Will you share your experience of living with someone with a mental health problem?
- Click to download research summary
Resources
Information from Rethink
Rethink has a section on their website which gives information and support for young people whose brother or sister has a severe mental illness.
Other useful websites
The National Young Carers Initiative
run by The Children’s Society Include project. The website has information for young carers and a comprehensive listing of young carers’ groups and projects that offer support in your neighbourhood.
‘I care for someone with mental health problems’
This is a site for young carers with information and online discussion groups, set up by The Princess Royal Trust for Carers
NHS Choices has a section for young carers and tells you how you can get emotional support and practical help.
There is also a NHS Carers Direct helpline, 0808 802 0202, open weekdays 8am to 9pm and weekends 11am to 4pm. Call for free and confidential information.
Young Carers Research Group at Loughborough University
The Group carries out research about children with caring responsibilities.
This website contains information about voices, visions, coping, recovery, getting help in a crisis and peer support groups for young people aged 12 to 18. Created by Mind in Camden, the site contains useful information for carers as well as young people who are having these experiences.
Resources
Practice guidance from The Children’s Society –this document shows families and authorities what services could be available to help at home.
The health and well being of young carers
Research Briefing from the Social Care Institute of Excellence